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Give your pharmacy notice each time you need a script filled - at this early introduction stage, it may not be filled instantly. Postage is free or you can even do it online: bit. When the new treatments became available, I went to my local community health centre and got a prescription. At Hepatitis NSW we are hearing from people who began their eight week treatment course in March and who are already waiting for their SVR test to see if they are cured. Would love to see hep C examples, hep A etc, too. Many pharmacies discovered that purchasing the drugs from suppliers at full price and then waiting for reimbursement from Medicare was not a viable business proposition for them. It is our great expectation and hope that the trend will not only continue but also increase substantially as more and more people learn that the Peg-Interferon days are over and then commence their treatments on the direct acting antiviral medicines. I posted information on Facebook regarding hep C and hep B and was dismayed at how little people knew about it, but at least I got to address their stigmas! Cheers Grace Editor. Yours, Kim Thanks for your feedback and suggestions, Kim. The issue was not an isolated one either, with calls from across Sydney and the state.{/INSERTKEYS}{/PARAGRAPH} The bump on effect saw many people, script in hand, being told their chemist could not or would not stock the medications. Contributions to Hep Review are subject to editing for consistency and accuracy. Hep B is a potentially deadly virus that many people around the world and in Australia live with. Come Tuesday March 1st, the Australian Government made good on its promise and the new treatments became widely available to the public with no restrictions on health status, or whether or not a person injected. Less than two months later, this was followed by the announcement that another combination DAA β€” known as Viekira Pak β€” would similarly be made available from 1 May. This is amazing. Please keep trying, you never know your chances. Regardless it is clear there was a significant uptake of the DAAs during that first month. Plus, my fellow genotype 1a sufferers were not cured even after all that. In the first four to six weeks following the listing of hepatitis C DAAs on the PBS, the Hepatitis Infoline received a significant number of calls from people stating they had been unable to get their scripts filled at their community pharmacy. I have a great Liver specialist based at Tamworth Hospital who I have been seeing for a few years. Has it been working for people taking the medication? There is a lot of buzz about the lack of side-effects associated with the new treatments. Judging by only a small sampling of the feedback being received on the Hepatitis Infoline those people who started the eight week treatment courses in March are now waiting for their SVR test to confirm they are clear of the virus. While not having shame or being embarrassed about being infected, the opportunity to be cured means that I feel like I can participate in my life far more fully. This permission does not apply to images, graphics or cartoons. Many thanks for your feedback. In the past 12 months, the discussion among my friends about hepatitis C has changed from people dying of liver disease or being on the transplant list to reports of blood tests showing no virus. How did medical professionals, pharmacy and support workers navigate new treatment guidelines, medicine purchasing and availability, and patient care? Dear Hep Review, Thanks for your informative magazine. I have been approved for the new treatment. Information, resources and advertising in Hep Review do not constitute endorsement or recommendation of any medical treatment or product. While the old PegInterferon therapy was a one size-fits all treatment the. Firstly, let us say thank you very much for regularly sending in the survey, it helps us greatly to get the feedback from our awesome readers. I have started Harvoni treatment and do not feel different in any way. Hep Review magazine is a lifeline for many people, linking them to news, information, views and stories. We accept contribution of articles about health and personal aspects of hep C or hep B. Furthermore, initial figures suggest that the longer someone was on the treatment the possibility of experiencing side effects could also increase. Genotypes 1, 2 and 3 are now more easily treated and, while 1 and 3 are the most common genotypes across Australia, there are still a significant number of people in the country living with genotypes 4, 5 or 6. Over 1, people across Australia were prescribed Sovaldi, Harvoni or other forms of new hep C medication; that number for March alone was more than the number of people who were started on PegInterferon treatment for all of Given there is estimated to be over , people in Australia living with hepatitis C those 1, prescriptions represent less than one percent of the iceberg, but it is still an amazing and very encouraging start. In trusting my doctor, I have finally surrendered to thinking that such side effects are not a big price to pay to add more years onto my good life. I must admit this is a bit disappointing as I could do with some weight loss! Imagining not having hep C has a significant psychological impact for me. We will definitely be including more information about hepatitis B in this and coming editions of Hep Review - in fact, please see 15 Things Everybody Should Know About Hepatitis B on page 18 in this very issue! Despite this, a lot was accomplished β€”from across government, the health sector and non-government organisations, including Hepatitis NSW β€” within a very short period. While I understand this may not be the actual cost paid by the Australian Government, I am very grateful that the government has subsidised the enormous cost of these medicines to enable me to be cured of hep C. This issue does get raised with us from time to time and while we would like to think the articles in each edition are of use to most if not all our readers, sometimes - due to our aims and objectives the balance will tip towards providing material for people who currently, or used to, inject drugs; but please check out the article on discrimination on page 25 in this edition. I suspect it will be more than I realise. I have not had any headaches, I do not feel tired or nauseated. At this point in time processes and procedures are still shifting and changing. Please share your feedback with us through the form on page 61! Helpful tips for dealing with the work place, privacy, discrimination, and your rights also asking for leniency during treatment would make for useful articles. Was gaining access to treatment, at any of the relevant stages, easy or problematic? Hepatitis NSW would like to acknowledge and show respect for the Gadigal people as the traditional custodians of the land on which Hep Review is published. The clinic hand delivered my prescription to a pharmacy of my choice. My course is for 12 weeks and the script is repeated each month. Where people were once fully supported through the arduous Peg-Interferon regimen, the issue of support during treatment with the new DAAs, especially where a person is struggling with side effects, still needs to be considered. The views expressed in this magazine and in any flyers enclosed with it are not necessarily those of Hepatitis NSW or our funding body. At the time of writing the drug combination Zepatier, for the treatment of genotypes 1, 4 and 6, was being considered by the Pharmaceutical Benefits Advisory Committee PBAC for possible recommendation to the Health Minister for PBS listing status see page 24 for further information. I believe this would be helpful for a lot of people, as I am sure there are lots of people out there in this situation. Reprint permission: hepreview hep. While that information was derived from PBS reporting of prescriptions during March the data itself may not be complete. There are next generation pan-genotypic drugs able to treat across the spectrum of genotypes in development but it may be some time before they arrive in Australia. I saw it knock people down like some terrible chemotherapy treatment and it was an emotional and physical roller coaster for most. Today, I am six weeks into what may be an eight week treatment. He did however monitor my liver health on a regular basis and told me about a different treatment coming out which sounded very hopeful and much more successful for my genotype. Steve Gribbin, a long time volunteer and advocate here at Hepatitis NSW, has generously shared the story of his experience recovering from his life saving liver transplant. I know I loved seeing my pathology figures. {PARAGRAPH}{INSERTKEYS}Contact phone 02 email hepreview hep. Thousands of people across the country will not only have started treatment on direct acting anti-viral DAA drugs but an increasing number will have also finished their courses. In addition, there is a load of other useful info and news on the new treatments peppered throughout these pages. Contributors should supply their contact details and indicate whether they want their name published. At the time of writing this article in late May, a picture of the uptake of the new treatments for hep C during March was becoming clearer thanks to data gathered and released by the Kirby Institute. Regards Donna Hello Donna. This is because liver clinics in many public hospitals have been issuing scripts under the s I knew that this was insane given the opportunity to be cured, and the experience of friends who went through the debilitating side effects of interferon based treatments. Unfortunately there are still people who are missing out on access to effective treatment. The winner is drawn randomly every four months, so overall those are pretty good odds! There were a number of teething problems around distribution and implementation encountered in the initial roll-out of the medication. So here I am. I feel that there is a responsibility for me to do everything I can to be cured β€” which really is just to be taking a tablet a day. Viekira Pak became available through the PBS as a treatment option from 1 May and there are other drugs that will benefit those who have Genotypes 4 and 6 and are being submitted for consideration to the Pharmaceutical Benefits Advisory Committee. He was understanding as to why I did not want to go on the Interferon treatment and never once made me feel bad for being fearful. Regulars Letters Other battles! And besides, having hep C, I often suffer with headaches and tiredness anyway. Anecdotally, the extent to which someone may. Dear Hep Review, I think it would be good to have more information for people who contracted the virus through means other than injecting, and how to deal with the stigma attached to hep C and being labelled drug users. While the roll-out of the new treatments has been relatively drama free and straightforward for many, there. My liver specialist tells me that it is vital not to miss one day of the course but if I do I should let him know immediately. The worry I had put myself through seems unnecessary. I contracted hep C genotype 1a from my adventurous youth and my fear of enlisting for treatment was due to watching good friends go through the old Interferon treatment. But wait! After the nausea started there were a couple of times when I. It would be great though if there were more chances to win the survey prize. This is fantastic news! First diagnosed in , John has lived with this secret for much of his adult life.